DD Waitlist News

Published Article Category
2022-03-15

The 2022 Legislative Session is Over

$59,615,290 approved to transition about 1100 individuals off the waitlist.

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Florida
2022-03-14

Fact-checking Nikki Fried’s claim about Florida’s Medicaid funding

The state is 49th in the U.S. when it comes to spending on services for people with disabilities.

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Florida
2022-01-12

Lawmakers want state economists to examine costs, need for Medicaid developmental disability programs

Florida’s top economists could be taking a closer look at the number of people with developmental and intellectual disabilities in Florida who require home- and community-based services.

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Florida
2022-01-11

Medicaid for developmentally disabled, nursing home transparency are tops for Carlos Guillermo Smith

Rep. Carlos Guillermo Smith is geared up for the 2022 Legislative Session, one in which he promises to shine the light on what he considers one of the least understood issues in the Florida Legislature: the needs of people with developmental disabilities.

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Florida
2021-12-13

Group home closures forcing some into the streets, nonprofits say

Group homes, supporting Floridians with intellectual and developmental disabilities, are struggling to hire staff. Providers are calling it a crisis, with funding from the state among the lowest in the country. The ABC Action News I-Team found that within the last six months, more than 100 group homes have closed, forcing some residents into the streets.

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Florida
2021-11-16

Special Session won’t address long-running waitlist for services for people with disability

News Report from WFTV Channel 9 Orlando (ABC Affiliated) featuring our Florida DD Waitlist Campaign.

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Florida
2021-11-05

He has Down syndrome and has been on Florida’s waiting list for services for 16 years. He is not alone

Unfortunately, Florida legislators have refused to properly fund that program. So Ques [her son], who was put on the waiting list when he was 14 years old is still waiting. He turns 31 next week.

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Florida
2021-10-08

Gov. DeSantis administration mum on how it plans to spend $622M in extra Medicaid payments

The state is not giving details on how it plans to distribute the majority of those funds to the direct service providers who care for the elderly and people with intellectual and developmental disabilities.

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Florida
2021-09-20

Medicaid waitlist remains long after $95 million infusion

More than 22,000 people with intellectual and developmental disabilities are on a waiting list for Medicaid services, budget documents show. That’s despite lawmakers targeting $95 million in additional funding this past spring to reduce the backlog.

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Florida
2021-08-16

Families fight to maintain care for loved ones with developmental disabilities

Despite a recent increase in funding, many people with developmental disabilities, who already receive money from the state, are fighting for benefits.

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Florida
2021-01-29

Gov. DeSantis health budget wins praise — mostly

Gov. Ron DeSantis’ proposed $96.6 billion budget unveiled Thursday got high marks from most, but not all, health-care providers that treat poor, elderly and disabled Floridians.

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Florida
2020-03-16

Florida's Legislative Session Draws to a Close

The Agency for Persons with Disabilities (APD) closed out their budget items with generous funding from the House and the Senate as follows (all dollar amounts include federal matching funds). Adult Day Training Provider Rate Increase - $7,486,373 Personal Supports Provider Rate Increase - $27,670,492 Residential Habilitation Provider Rate Increase- $5,450,246 Resources for Persons with Unique Abilities -$58,034,834 Serve Additional Clients on the Home and Community Based Services Waiver Waitlist- $30,223,451 Funding for the APD deficits from the past two years- $241 million dollars

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Florida
2020-03-11

Lawmakers back overhaul of disabilities program

Florida is poised to overhaul a state program that helps tens of thousands of people with disabilities live at home or in their communities, after lawmakers on Wednesday passed a bill designed to bring stability to the program following years of cost overruns and deficits.

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Florida
2020-03-05

Disabilities program part of health care end game

Senate Appropriations Chairman Rob Bradley, R- Fleming Island, told The News Service of Florida on Wednesday that the Senate remains focused on the state Agency for Persons with Disabilities and the Medicaid-funded iBudget program, which provides services to tens of thousands of people with developmental and intellectual disabilities.

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Florida
2020-02-13

House shies away from overhauling the disabilities program

The chance that Florida legislators this year will redesign the Medicaid program for people with developmental disabilities is dwindling. While the House has pushed in the past for an overhaul of the program, the Republican who oversees health-care spending said she thinks, for now, the agency running the program can continue operating as is.

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Florida
2019-09-13

Florida eyes cutting rates or services for disabled people

Potential changes could affect virtually every client that receives services through the state’s disabilities program, to save tens of millions from the agency’s bottom line.

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Florida
2019-03-25

Florida Senate health panel releases initial budget proposal

The Senate’s proposed budget doesn’t address reconfiguring the iBudget program but would appropriate $74.5 million to address the deficit and future growth. Moreover, the budget would direct $41.7 million in funding to provide a rate increase for direct care workers who work with people with intellectual and developmental disabilities.

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Florida
2019-02-01

Governor DeSantis pitches $91.3 billion spending plan

The proposal includes an additional $40.4 million to fund additional individuals in the iBudget waiver program administered by the Agency for Persons with Disabilities (APD).

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Florida
2019-01-10

Florida Plummets in National Ranking of Helping People with Intellectual Disabilities, Report Says

Florida has plunged in a national ranking of states’ progress toward helping people with intellectual and developmental disabilities lead more independent and productive lives, according to a report released late Wednesday that blamed “declining state investments.”

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Florida
2019-01-02

Florida Faces ADA Lawsuit Over Medicaid Wait List

Six disabled and elderly Floridians are suing the state over alleged violations of the Americans with Disabilities Act. The case involves long wait times of up to 3½ years for access to in-home health care through Medicaid. The plaintiffs are among some 50,000 disabled and elderly people who are on a wait list to get Medicaid approval for in-home services. The suit alleges that the patients face hardships without these services, said Regan Bailey, litigation director for Justice in Aging, which is representing the plaintiffs along with Disability Rights Florida and the Southern Legal Counsel.

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Florida
2018-12-13

Advocacy Groups Sue State of Florida for Violating the Americans with Disabilities Act

A class action lawsuit has been filed against Florida’s Agency for Health Care Administration asserts that the state’s management of its Medicaid long-term care system violates Title II of the Americans with Disabilities Act. By perpetuating the institutionalization and segregation of older adults and people with disabilities and severely limiting their access to community-based services, the state forces people to unnecessarily enter nursing facilities to get care. Justice in Aging, a national non-profit legal advocacy organization that fights senior poverty, and Southern Legal Counsel, a Gainesville, Florida-based, statewide nonprofit law firm, filed the suit on behalf of their clients, who are on the state’s waiting list for home-based long-term-care services and are currently at risk of unnecessary and unwanted institutionalization. Disability Rights Florida, private attorney Nancy Wright, and lawyers from the firm of Cozen O’Connor are co-counsel.

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Florida
2018-01-23

Florida House Budget Plan

The proposed budget unveiled on Tuesday also includes $22 million to help pay for an Agency for Persons with Disabilities “home and community-based services waiver” program, which serves people with intellectual disabilities, autism, cerebral palsy or other disabilities. Brodeur said the money will provide care for upward of 900 people on a waiting list. Brodeur included $41 million in the budget proposal to increase rates and ensure that the caregivers who work with the Agency for Persons with Disabilities clients are paid at least minimum wage.

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Florida
2018-01-07

Florida Agency for disabled seeks millions to avoid deficit

One of Gov. Rick Scott’s priorities after taking office in 2011 was to resolve a longstanding deficit in the Medicaid “waiver” program that serves people with developmental disabilities. Now, nearly seven years later, the Agency for Persons with Disabilities will be in the red if the Legislature doesn’t agree to spend at least an additional $89 million for a program meant to keep people with disabilities out of institutions.

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Florida
2016-09-03

(Miami Herald) 3 courts slap Florida for refusing to aid disabled people

Since turning 3, Marco Tapie has never gone more than a few days without a seizure; savage, sustained, unceasing seizures that sometimes left him bruised and bloodied. They also left him intellectually disabled, the result of trauma to his developing brain. Tapie’s mother, Maria Garaitonandia, asked state disability administrators two years ago for help in caring for Tapie, now 23, and too strapping for his mother to control him when his rare form of epilepsy sends him into paroxysms of unintended motion. The Agency for Persons with Disabilities refused, saying the young man failed to meet eligibility for a program that serves disabled Floridians in their homes or communities...

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Florida
2016-09-03

(Miami Herald) The machinations used to deny care to one disabled foster kid

No one at Florida’s disabilities agency disputes that S.J. is an unfortunate soul who needs help from the state just to survive. Agency heads just refused to pay for it. S.J. is a 16-year-old foster child with a significant intellectual impairment, bipolar disorder, a severe behavioral problem, and the propensity for making decisions that are so ill-advised as to “put her safety and health at risk,” a hearing officer wrote. Her mother surrendered her right to raise the teen. Her father is expected to abrogate his rights, as well. Since November 2014, when S.J. entered foster care, she has burned through 11 foster homes and seven juvenile justice facilities...

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Florida
2016-01-13

(PolitiFact Florida) Rick Scott: Florida completely funded the critical needs waiting list for first time

Gov. Rick Scott, a Republican seeking $1 billion in tax cuts this year, portrayed state spending on services for disabled Floridians as solid during his 2016 State of the State address. "With your help, we have invested Florida taxpayer dollars to make a lasting difference in the lives of Florida families," he said during the Jan. 12 speech. "For the first time ever, we completely funded the critical needs waiting list for persons with unique abilities so they can get the help they need."

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Florida
2015-10-17

(Orlando Sentinel) Florida's special-needs families find wait list up to 10 years long

(Originally published October, 2015) Greg Creese watches as his 4-year-old daughter paces across his living room. Back and forth. Back and forth. Until something on the television catches Avery's eye. She pauses and lets out a soft, high-pitched sound — not a word, more of a cheep — and then resumes her pacing. Creese's world revolves around this little girl — his "Avery Bear" with her sandy brown hair and hazel eyes. But she absolutely drains him. Financially and energy-wise. Avery, you see, lives with Phelan-McDermid Syndrome, a rare autism-related condition that requires constant care. She can't speak. She can't feed herself. There's no promise she ever will...

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Florida
2012-07-26

(Disability Rights Florida) DD waiver waitlist litigation settled

Disability Rights Florida filed the Dykes v. Dudek lawsuit in March of 2011 on behalf of individuals with intellectual and developmental disabilities who needed care, treatment, and habilitation and who were on the Waitlist for DD Medicaid Waiver services. Some of the plaintiffs resided in private ICF/DDs or nursing homes and some of the plaintiffs resided in their families’ homes. Many had been on the DD Waitlist for over five years.

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Florida

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